Well, today it happened.
After three nights of serious insomnia, I attempted to take a nap on the couch. With both girls napping, I took advantage of the potential one-hour window. Within minutes of laying down, the phone rang. Not just any ring, the long distance ring tone ring. The three short rings instead of the local, regular ring. Could it be? Could it be CHOP calling? Next, I hear the caller ID's robotic female voice say, "Chil Hosp." Caleb was already sprinting over to grab the phone. I popped up like a meerkat over the sofa. For those of you who don't know what a meerkat is, I looked like this...
After three nights of serious insomnia, I attempted to take a nap on the couch. With both girls napping, I took advantage of the potential one-hour window. Within minutes of laying down, the phone rang. Not just any ring, the long distance ring tone ring. The three short rings instead of the local, regular ring. Could it be? Could it be CHOP calling? Next, I hear the caller ID's robotic female voice say, "Chil Hosp." Caleb was already sprinting over to grab the phone. I popped up like a meerkat over the sofa. For those of you who don't know what a meerkat is, I looked like this...
I sat, staring at him as if I could overhear the conversation if I concentrated on his facial expression hard enough. Then he says, "Stace, September 14 or September 20?" Um, hello. Is that even a question - September 14!
So, there you have it. Zoe's Glenn is on the books. We will travel from Phoenix to Philly on September 9 and arrive in Philly late that evening. We'll have to stay in a hotel until Zoe is admitted because the Ronald McDonald House does not accept families until their children are admitted as patients. Zoe will see Dr. Szwast, her Philly cardiologist, on September 10th for an EKG, ECHO, chest xray and blood tests. We'll have the weekend to relax, as best we can. Monday morning, September 13th, Zoe will undergo her heart catheterization and be admitted to CHOP. The next morning, September 14th, Dr. Spray will perform Zoe's Glenn.
Writing "Glenn" on the calendar felt so good. I even made up a little "surgery dance" and performed it by myself in the bedroom. No one saw me. I don't even remember how it went, and it was only a few hours ago. My adrenaline is still in high gear.
I texted Zoe's cardiologist here in Arizona: "We have a surgery date!" and let him know the details. He quickly responded with: "Less than 1 month...and counting! Let's keep up some good weight gain." Of course, he buzzkilled my excitement, reminding me we still have a long road to hoe.
Little does he know, Zoe's recorded weight for today. The recommended 5 kg mark...
(A congratulatory handshake from Dad for a job well done!)Go, Zoe, Go!!!
As always, thank you for your continued support and love for Ms. Zoe.
The Lihns
Seriously Stace, Zoe is SOOOO cute! Love that pic of her on the scale :) So glad you have her Glenn scheduled! I will keep praying hard for Miss Zoe - I am sure it's working!
ReplyDeleteThat is EXCITING news!! I know the actual surgery date won't be exciting... but you have a date. A date to get Zoe one step closer to feeling like a "real" baby.
ReplyDeleteWow, this is AWESOME!!! So glad you have your date set - hopefully ours will be set by this time next week, too.
ReplyDeleteBig news! The Glenn date is a date for mixed blessings...you have to take her for another surgery, but after the Glenn you have a little bit of time before you have to think of another surgery.
ReplyDeleteSo HAPPY Stacey and Caleb you have a date for Zoes Glenn. Before you know it it will be here. We are all praying all goes as well for Zoe as it did for Jake and you are home again in a week! <3 Hugs and Prayers ........
ReplyDeleteThe Ronald McDonald house lets you stay even if surgery is not that day or the next. You just tell them that you have many pre-op appointments prior to the surgery and they'll let you stay. My Name is Alba and I also have an HLHS son named Adam. He just had his Hemi-Fonton, which is a version of the Glenn procedure, at CHOP.
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