Friday, January 10, 2014


The title of this post - one of Zoe's favorite most appropriate expressions - and my reaction when I saw our last update is from September 2013!!!  Yikes - someone's been busy!

I won't go into great detail about the last several months, but as you can probably imagine, life is good.  Zoe is flourishing with her Fontan circulation.  She's growing, slowing gaining some weight and becoming a bit too smart.  The mix of intelligence, feistiness and determination is both good and bad.  We're down to giving medications once per day and her oxygen saturations are in the mid-90s. Phew!

Emmy is doing incredible in Kindergarten.  She loves school and brings home perfect test scores almost weekly.  She's in a liberal arts prep school and I can just see it now - a UPenn Medical Student!  That Doc McStuffins sure is a good influence!

Caleb and I are staying busy between work, kindergarten (nightly homework) and play.  I've expanded my duties and am assisting the National Pediatric Cardiology Quality Improvement Collaborative, bridging my duties with Sisters by Heart.  It's really a great opportunity to unite parents and clinicians, to work together improving HLHS treatment and care.  Of course my full time job as a paralegal is priority, but I find fulfillment in both arenas, so I'm doubling up!

Don't you love how this post turned into a seemingly Christmas-card-esque annual wrap up?  Ugh, so not what I had in mind. 

I'll leave you with some family photos from our traditional year-end photo shoot with Blue Lily.  The setting - an auto junkyard.  You see junk? We see beauty!