After Zoe's diagnosis (in utero), I was blessed to find some wonderful moms who were dealing with my exact situation - a prenatal diagnosis which rocked our worlds. Jennifer Marrone, Mia's mom, is one of those moms whom I've come to know very well. We shared our fears during our pregnancies and delivered our babies within a week of each other at CHOP. We fought through surgeries and complications. Once we both returned home with our CHD fighters, we communicated about our daily lives and how they've changed. We continued to speak of our fears. The fear of losing a child. Although we knew the risks, we never thought (or perhaps were in denial) that one of our CHD Warriors would lose their battle. Sadly (a gross understatement), Mia Grace Marrone lost her battle with HLHS just a few days shy of her 3 month birthday.
We love you Jen, Ray, Madden and Cole and will never forget Miss Mia. She's touched so many in such a short time. You'll always be a part of our family.
With our deepest sympathies,
Stacey, Caleb, Emerson and Zoe