tag:blogger.com,1999:blog-1771856869637590830.post1228629925881351227..comments2024-03-12T22:59:38.386-07:00Comments on The Lihn Family: What is normal?Staceyhttp://www.blogger.com/profile/00236715948080857359noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1771856869637590830.post-17304227599468925732010-08-01T07:31:34.817-07:002010-08-01T07:31:34.817-07:00I finally had a chance to come by and catch up on ...I finally had a chance to come by and catch up on Zoe and your blog. She is such a little trooper! First of all, I am amazed that she hasn't needed Captopril or a feeding tube yet... SO awesome!! <br /><br />I also noticed she sees Dr Stock. Our favorite cardiologist ever! <br /><br />I read about your heart friend Mia... I am so sorry. My prayers to her precious family. <br /><br />I just added Zoe to my sidebar so I can read all the updates. <br /><br />Hopefully we'll run into you at Dr S. office sometime soon. I'd love to meet you and Zoe.The Simmons Familyhttps://www.blogger.com/profile/14206401418544523378noreply@blogger.comtag:blogger.com,1999:blog-1771856869637590830.post-76150024460332994472010-08-01T06:04:10.886-07:002010-08-01T06:04:10.886-07:00Stacey,
First of all I have to say I am totally J...Stacey,<br /><br />First of all I have to say I am totally Jealous that you only have to give meds twice a day. I thought we would get rid of some this trip instead we added. I give them 4 times a day 7 diff meds and we may increase to 8 after surgery lol. <br /><br />As for the rest, I am praying for you guys and I know it is so hard sometimes worrying constantly. Zoe looks amazing and I know she will continue to amaze you. I will be praying the arch does not narrow and that she does not need a ng tube. If she does just know that it will be a temporary way to get you here! I was upset at first about Jake's g-tube but I know he would not have become such a chunk without it.<br /><br />I love you guys and think of you daily. Wish I could give you a hug and we could vent in person. You mean the world to me, hope you know that. <br /><br />Heart hugs.Kathy Bakerhttps://www.blogger.com/profile/04770278646550731651noreply@blogger.com